neuro hospital

We went to Mbale today, about a two hour drive from Soroti by some of the worst roads we’ve been on yet. We took with us two little boys and their parents from the village who needed to go the Neuro hospital as they both have hydrocephalus. I mentioned Lasaro a few days ago. He is about 2 years old and can’t feed himself or sit up and I’m afraid he is in constant pain as he won’t smile and cries when moves. His brother Abraham is about 9 months old. He smiles and tries to hold your fingers but can’t even lift his head. He has osteogenesis imperfecta as well, which seems to have prevented his fontanels from closing. Their parents are very poor farmers. The triage doctor at the hospital pretty much said that there was nothing that they would do for them as they have bone problems not brain problems. So frustrating! The parents lost a whole day of work and accomplished nothing. There is so little hope we can offer them!