Saturday, August 17, 2013

Update on some kids...

Lets start with a positive update first...
Abraham- This is a little kid that has G6PD deficiency and a complicated medical history that I've been involved with for a while. Back in December we finally got a diagnosis for him. (Story here).  Today, I've happy to report that he seems to really be thriving! He hasn't been sick since we got the diagnosis and has finally put on a few pounds and some inches.
He was happy to show me how big he is getting!

Sarah- I just discovered I haven't written about her since 2010. Oops! She is a determined young woman who has Osteogenesis Imperfecta (also called brittle bone disease).  She is bright and willing to work hard. She expressed desire, so two years ago we go her into the handicapped school where she attempted to finish 3rd grade.  But she had missed so much school because of her inability to get around and constant injuries, and at 18 years old she just didn't want to spend more time in primary school. So she transferred into the tailoring program. She is doing really well and says she is enjoying it.
They have modified a machine for her that sits on the floor and she can run it with her arms. It is a little funny to see her working at a sewing machine is almost taller than she is but she's quick and it is a skill she can do even with her handicaps. She has completed one year and has one year to go.

Today her boarding school let out so I took her the 20 kilometers back to her home in the village. She proudly showed off her work to her family and her brothers tried on the patterns that they stich in paper first as practice.
 This little guy still makes me so sad. He is Sarah's little brother and also has Osteogenesis Imperfecta. I wrote about him here and here. He is surviving but that seems to be about all. He is 5 years old, going on 6 and he still can hardly sit. He was able to feed himself this bit of banana but he didn't get any teeth (as a result of the disease) so anything else he could feed himself is too hard. His arms are too twisted to use a spoon. He doesn't talk and can't really hold his own head up without support. But he isn't sick at the moment which is actually huge. He usually has sores or a respiratory illness. No broken bones right now which is also significant. If he has made it this far he may be able to move around a bit like his sister.
Please forgive my camera woman, she is a bit inexperienced. And I get busy and don't take the time for pictures.
 All three of these kids were together in one post last year too. April 2012  Thanks for praying for them! 
One last picture, this is Sarah and Lazaro's mother. Her husband left her for a new wife and she has 9 kids to care for. I always pray with her and try to encourage her. 

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