So we headed back to Soroti yesterday as we are still waiting on blood work for a definitive diagnosis but are really thinking it is Glucose 6 Phosphate Dehydrogenase (G6PD) deficiency. There is still a chance it is an autoimmune issue but less likely. It is good know know what Abraham has but is discouraging as there is no cure. The only treatment is to avoid the causes that trigger a hemolytic episode and to transfuse if he does get into trouble. We will taper him off the steroids that he never should have been on in the first place, see if we can get him on some malaria prophylaxis and educate his parents on his triggers. This picture is Deborah and Emma, Abraham's parents and Abraham in orange. Also his baby brother. Missing from this family picture are his older brother and two sisters.
Thanks everyone for your prayers!!